Alice Wong. (2020). Disability Visibility: First-Person Stories from the Twenty-First Century. Knopf Doubleday Publishing Group.

Alice Wong. 2020. Disability Visibility: First-Person Stories From the Twenty-First Century. Knopf Doubleday Publishing Group.

Alice Wong, Disability Visibility: First-Person Stories From the Twenty-First Century. Knopf Doubleday Publishing Group, 2020.

Alice Wong. Disability Visibility: First-Person Stories From the Twenty-First Century. Knopf Doubleday Publishing Group, 2020.

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1. • role: Editor
   • fileAs: Wong, Alice
   • bioText: Alice Wong is a disabled activist, media maker, and research consultant based in San Francisco, California. She is the founder and director of the Disability Visibility Project, an online community dedicated tocreating, sharing, and amplifying disability media and culture. Alice is also the host and co-producer of the Disability Visibility podcast and co-partner in a number of collaborations such as #CripTheVote and Access Is Love. From 2013 to 2015, Alice served as a member of the National Council on Disability, an appointment by President Barack Obama. You can follow her on Twitter: @SFdirewolf. For more: disabilityvisibilityproject.com.
   • name: Alice Wong

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2020-06-30T00:00:00-04:00

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title

Disability Visibility

fullDescription

“Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune
One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act,
From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

reviews

1. • premium: True
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   • content:

     April 15, 2020
     A self-described "disabled activist" brings together diverse perspectives in an anthology to be published on the 30th anniversary of the Americans With Disabilities Act. Wong, the founder and director of the Disability Visibility Project, makes it clear that she never intended the book to serve as a "best of" work or a quasi-academic syllabus for "Disability 101." As she writes, "I want to center the wisdom of disabled people and welcome others in, rather than asking for permission or acknowledgment." The editor notes that, according to the most recent U.S. census, 20% of citizens in the country live with a disability. The book is divided into four sections. "Being" captures writings that explain the daily challenges of wrestling with a disability, from blindness and deafness to autism, bipolar personality, generalized mental illness, fibromyalgia, cerebral palsy, spina bifida, and others. In "Becoming," the essays focus less on defining a specific disability and more on how the contributors have figured out how to follow a life-affirming path. "Doing" displays the accomplishments--many of them quite remarkable--that affect not only the anthologists, but also society at large. The final section, "Connecting," illuminates how those labeled as disabled find ways to transcend isolation. Some of the essays are original, but many have been previously published in newspapers, magazines, scholarly journals, and elsewhere. Readers will recognize relatively common scenes, such as Haben Girma's navigating with a guide dog ("Guide Dogs Don't Lead Blind People. We Wander as One."), while other contributions ably demonstrate that not all disabilities are apparent. Recognizing that "it is impossible to capture the full expanse of the disability experience in one book," the editor offers a robust section of further reading that encompasses not just nonfiction, but also fiction, poetry, podcasts, and other forms of expression. Wong's discerning selections, bolstered by the activism that shines through, will educate and inspire readers.

     COPYRIGHT(2020) Kirkus Reviews, ALL RIGHTS RESERVED.

2. • premium: True
   • source:
   • content:

     June 1, 2020
     

     In the powerful introduction to this collection, Wong, founder of the Disability Visibility Project and host of the related podcast Disability Visibility, reminds us that disability is not a monolith and that disability rights are civil rights. As she does on her podcast, #CripTheVote, Wong lets people speak for themselves. Standout essays include those by Jen Deerinwater on disparities in health care among Indigenous people; Diana Cejas on the vulnerability of being a patient in the hospital where she works; A.H. Reaume on the myth of independence and the need for more representation in literature; and Ellen Samuels on "crip time," or not living life in normative stages. Alongside prominent figures, such as Maysoon Zayid, Keah Brown, and Haben Girma, readers are introduced to others who are sharing their experiences for the first time. The collection sheds insight on topics that are rarely explored in mainstream works, including the difficulties of finding adaptive clothing, the dangerous mindset of the cure mentality, and the high rates of disability among LGBTQ people. Overall, Wong urges people with disabilities to expect more and deserve more. VERDICT Bringing varied voices to the forefront, this collection is an ideal starting ground for finding community and sparking further reading.--Stephanie Sendaula, Library Journal

     Copyright 2020 Library Journal, LLC Used with permission.

3. • premium: True
   • source:
   • content:

     June 1, 2020
     This collection of essays is a manifesto generated by passionate, determined individuals with disabilities who are trying to survive and thrive in our ableist society. Editor Wong is the director of the Disability Visibility Project, an online community dedicated to supporting and amplifying disability culture. Tired of being underrepresented in the media and marginalized by society, 37 activists have documented the social, legal, ethical, and medical challenges they face in their struggles for equitable treatment, recognition, and acceptance. The contributors include a pediatric neurologist, an astronomer, community activists, civil rights lawyers, artists and performers, and writers and journalists. Their articles encompass political statements, personal histories, poetry, dictated accounts, and even a eulogy. They document myriad incidents of ingrained and systemic prejudice and injustice. Brutally honest and sometimes difficult to read, these compelling testimonials tell of casual cruelty, isolation, condescending treatment, pity, discrimination, physical abuse, and sexual exploitation. This is a wake-up call and a justified demand for greater visibility for all members of our communities, and it deserves a wide audience.(Reprinted with permission of Booklist, copyright 2020, American Library Association.)

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“Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune
One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act,
From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to...

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