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The family gene: a mission to turn my deadly inheritance into a hopeful future

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Description

A riveting medical mystery about a young woman’s quest to uncover the truth about her likely fatal genetic disorder that opens a window onto the exploding field of genomic medicine

When Joselin Linder was in her twenties her legs suddenly started to swell. After years of misdiagnoses, doctors discovered a deadly blockage in her liver. Struggling to find  an explanation for her unusual condition, Joselin compared the medical chart of her father—who had died from a mysterious disease, ten years prior—with that of an uncle who had died under similarly strange circumstances. Delving further into the past, she discovered that her great-grandmother had displayed symptoms similar to hers before her death. Clearly, this was more than a fluke.
Setting out to build a more complete picture of the illness that haunted her family, Joselin approached Dr. Christine Seidman, the head of a group of world-class genetic researchers at Harvard Medical School, for help. Dr. Seidman had been working on her family’s case for twenty years and had finally confirmed that fourteen of Joselin’s relatives carried something called a private mutation—meaning that they were the first known people to experience the baffling symptoms of a brand new genetic mutation. Here, Joselin tells the story of their gene: the lives it claimed and the future of genomic medicine with the potential to save those that remain. 
Digging into family records and medical history, conducting interviews with relatives and friends, and reflecting on her own experiences with the Harvard doctor, Joselin pieces together the lineage of this deadly gene to write a gripping and unforgettable exploration of family, history, and love. A compelling chronicle of survival and perseverance, The Family Gene is an important story of a young woman reckoning with her father’s death, her own mortality, and her ethical obligations to herself and those closest to her.

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9780062378897
9780062378927
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Grouping Information

Grouped Work ID9b2a9ab1-bc97-fda7-8b98-55140cdbf72d
Grouping Titlefamily gene a mission to turn my deadly inheritance into a hopeful future
Grouping Authorjoselin linder
Grouping Categorybook
Grouping LanguageEnglish (eng)
Last Grouping Update2024-03-04 02:10:19AM
Last Indexed2024-03-04 02:23:24AM

Solr Fields

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Linder, Joselin
author2-role
hoopla digital
author_display
Linder, Joselin
available_at_catalog
Martin Luther King Jr.
Pocket-Greenhaven
detailed_location_catalog
Martin Luther King, Jr.
Pocket-Greenhaven
display_description

A riveting medical mystery about a young woman’s quest to uncover the truth about her likely fatal genetic disorder that opens a window onto the exploding field of genomic medicine

When Joselin Linder was in her twenties her legs suddenly started to swell. After years of misdiagnoses, doctors discovered a deadly blockage in her liver. Struggling to find  an explanation for her unusual condition, Joselin compared the medical chart of her father—who had died from a mysterious disease, ten years prior—with that of an uncle who had died under similarly strange circumstances. Delving further into the past, she discovered that her great-grandmother had displayed symptoms similar to hers before her death. Clearly, this was more than a fluke.
Setting out to build a more complete picture of the illness that haunted her family, Joselin approached Dr. Christine Seidman, the head of a group of world-class genetic researchers at Harvard Medical School, for help. Dr. Seidman had been working on her family’s case for twenty years and had finally confirmed that fourteen of Joselin’s relatives carried something called a private mutation—meaning that they were the first known people to experience the baffling symptoms of a brand new genetic mutation. Here, Joselin tells the story of their gene: the lives it claimed and the future of genomic medicine with the potential to save those that remain. 
Digging into family records and medical history, conducting interviews with relatives and friends, and reflecting on her own experiences with the Harvard doctor, Joselin pieces together the lineage of this deadly gene to write a gripping and unforgettable exploration of family, history, and love. A compelling chronicle of survival and perseverance, The Family Gene is an important story of a young woman reckoning with her father’s death, her own mortality, and her ethical obligations to herself and those closest to her.

format_catalog
Book
eBook
format_category_catalog
Books
eBook
id
9b2a9ab1-bc97-fda7-8b98-55140cdbf72d
isbn
9780062378897
9780062378927
itype_catalog
Adult Book Non-Fiction
last_indexed
2024-03-04T10:23:24.810Z
lexile_score
-1
literary_form
Non Fiction
literary_form_full
Non Fiction
local_callnumber_catalog
609 L744 2017
owning_library_catalog
Sacramento Public Library
owning_location_catalog
Martin Luther King Jr.
Pocket-Greenhaven
primary_isbn
9780062378897
publishDate
2017
publisher
Ecco, an imprint of HarperCollins Publishers
HarperCollins
recordtype
grouped_work
subject_facet
Biography
Electronic books
Ethics
Genetic disorders -- Patients -- United States -- Biography
Genetics
Linder, Joselin -- Health
Medical genetics -- Case studies
Medicine
Philosophy
title_display
The family gene : a mission to turn my deadly inheritance into a hopeful future
title_full
The Family Gene : A Mission to Turn My Deadly Inheritance into a Hopeful Future [electronic resource] / Joselin Linder
The Family Gene A Mission to Turn My Deadly Inheritance into a Hopeful Future
The family gene : a mission to turn my deadly inheritance into a hopeful future / Joselin Linder
title_short
The family gene
title_sub
a mission to turn my deadly inheritance into a hopeful future
topic_facet
Biography
Biography & Autobiography
Case studies
Electronic books
Ethics
Genetic disorders
Genetics
Health
Linder, Joselin
Medical
Medical genetics
Medicine
Nonfiction
Patients
Philosophy

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